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EXCLUSIVE: How 1 dad used AI to advance finding a treatment for his sons rare disease
2025-04-22 21:45:03| Spiritual Career Counseling
In the early morning hours, Stephanie Holzhuber woke because something was wrong with her then 7-month-old son, Max. Stephanie was in a panic and was like, Thomas, I think Max (had) a seizure, Thomas Wagner, Maxs dad and Holzhubers husband, told Kate Snow in an April 2 segment on TODAY. Max was lying on his side and he clearly looked like he was having a seizure. The couple called 911 and Max underwent a slew of scans and genetic testing at the hospital. As he continued having seizures over the next three weeks, his family finally learned what was wrong. He had a genetic condition called Alexander disease, and the outlook was bleak.Immediately the geneticist said, At the moment, there is no treatment, no cure and life expectancy is five to 10 years, Holzhuber recalled to TODAY. Bereft, Wagner wanted to do something. Using Google Gemini AI, he was able to better understand the condition and used what he learned to connect with researchers.Im just a dad, Wagner said. Gemi...
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